One of the things we both agreed to do when we got into our current tiny dwelling, was not bring anything into the house that doesn’t serve more than one purpose. So, we shop a lot of thrift stores and second hand stores looking for items that we need and can use, and of course,… Continue reading Stop And Smell The… Paper Roses?
In just over 12 hours I’ll be leaving what has become my caved cacoon and going back into the big bright world at work. To be honest, I am of mixed emotions about this. I love my job. I adore the people I work with and most of the people I work for on the… Continue reading W-Day and The Fear It Brings
That’s the question I’ve been asking myself lately – and one of the reasons I’ve not been blogging. I don’t want this blog to become about me and my illness. That’s not what we wanted when we decided to start working on SOUL. But the truth is, this illness has consumed my life. Its been… Continue reading I Am Not My Disease – Or Am I?
Dear God, As I sit to write this letter, the palsey has returned and my face is starting to droop. My shoulders feel as if they are being ripped from the sockets and my feet burn and ache. But I am not writing to complain. I am writing to say that I love you. I… Continue reading Dear God
I’ve been up all night. Well, no, that’s not quite true. We laid down so I could get a good neck and leg massage at about 4 yesterday evening and I finally fell asleep for a while, after almost 28 hours with no sleep. Then, I was right back up before 9 PM and have… Continue reading It’s 10:00 AM And Here I Sit
Dedicated to an old friend, Wendy Forga, who herself is battling Chronic Illness and the thoughtless comments of strangers. What does sick look like? You say it isn’t me. You say that I look healthy, so just how sick can I possibly be? What makes you think I don’t look sick, Is it just what… Continue reading What Does Sick Look Like?
I feel as if I’m loosing my mind. Can’t sleep, can’t rest, can’t get comfortable. It lasts for days, ebbing and flowing in intensity but never going away and then – like that – out of the blue – it goes away. But for how long? An hour? 12 Hours? 24 hours? I never know.… Continue reading As If I’m Going Crazy